Parkinson News You Can Use
A roundup of headlines, handy tools, and inspirational stories...
2025 First Day Cocoa + Critter Stroll
When:
Where: Brookdale Preserve, 66 Brook Road Rochester, NY 14623
Genesee Land Trust invites people of all ages and abilities for a special cocoa toast to celebrate the return of the fisher to Brookdale Preserve. The fisher – a very important member of the forest - was once hunted nearly to extinction for its thick dark fur. But now, thanks to decades of conservation, we’re finally starting to see the fisher again.
Start your new year with this fun-for-everyone stroll to look for signs of the fisher and learn more about this special tree-climbing critter, like why it’s sometimes called a “fisher cat” when it doesn’t eat much fish and isn’t a cat at all!
Genesee Land Trust will provide warm drinks and light snacks - please bring a mug. We will also be collecting nonperishable items for the state’s food drive.
We’ll start on the Genesee Valley Greenway Trail at Brook Road and go north toward Black Creek. Your outdoor adventure can be up to 4 miles – it’s 2 miles to the scenic double-arched stone culvert over the water, then 2 miles back. Move at your own pace and for as long or short as you like. Advance registration is appreciated for planning but not required.
Register
Please bring a mug for cocoa and non-perishable items for the state park food drive.
For more detailed information click here.
Start your new year with this fun-for-everyone stroll to look for signs of the fisher and learn more about this special tree-climbing critter, like why it’s sometimes called a “fisher cat” when it doesn’t eat much fish and isn’t a cat at all!
Genesee Land Trust will provide warm drinks and light snacks - please bring a mug. We will also be collecting nonperishable items for the state’s food drive.
We’ll start on the Genesee Valley Greenway Trail at Brook Road and go north toward Black Creek. Your outdoor adventure can be up to 4 miles – it’s 2 miles to the scenic double-arched stone culvert over the water, then 2 miles back. Move at your own pace and for as long or short as you like. Advance registration is appreciated for planning but not required.
Register
Please bring a mug for cocoa and non-perishable items for the state park food drive.
For more detailed information click here.
Recently Diagnosed with PD? Registration is open!
PDF
Group Objectives
Julie Bartlett is a licensed mental health counselor with over 35 years of experience providing individual counseling, group counseling and consultation. For more information on this free service, contact her at 585.615.6844 or jcbartlett28@gmail.com. The next session will begin in early 2025.
Also visit:
Recently Diagnosed | Online Guide
Inova Parkinson's and Movement Disorders Clinic (IPMDC) offers Recently Diagnosed programs, designed specifically for individuals who have been diagnosed with Parkinson’s within the last 5 years. These free, virtual sessions provide guidance and support to help you make informed choices regarding your health, knowledge, exercise routines, and lifestyle.
To help participants:
- Feel less isolated and more connected.
- Create a personal care plan.
- Learn stress reduction strategies.
- Learn about and practice healthy coping skills.
- Improve communication skills and self-advocacy.
Julie Bartlett is a licensed mental health counselor with over 35 years of experience providing individual counseling, group counseling and consultation. For more information on this free service, contact her at 585.615.6844 or jcbartlett28@gmail.com. The next session will begin in early 2025.
Also visit:
Recently Diagnosed | Online Guide
Inova Parkinson's and Movement Disorders Clinic (IPMDC) offers Recently Diagnosed programs, designed specifically for individuals who have been diagnosed with Parkinson’s within the last 5 years. These free, virtual sessions provide guidance and support to help you make informed choices regarding your health, knowledge, exercise routines, and lifestyle.
New Recording Available: "Rebranding" Parkinson's
NoSilverBullet4PD hosted Dr. Laurie Mischley, who is probably the world's leading Parkinson's naturopath.
Despite 200+ years of effort, we do not yet have a system to prevent, halt, or reverse Parkinson’s. Dr Mischley explores the notion that the problem lies in the lens through which we’ve been viewing it, the approaches we’ve been taking, and the assumptions we’ve been making.
This presentation followed by Q&A was recorded on November 11, 2024.
Courtesy of NoSilverBullet4PD.com
Despite 200+ years of effort, we do not yet have a system to prevent, halt, or reverse Parkinson’s. Dr Mischley explores the notion that the problem lies in the lens through which we’ve been viewing it, the approaches we’ve been taking, and the assumptions we’ve been making.
This presentation followed by Q&A was recorded on November 11, 2024.
Courtesy of NoSilverBullet4PD.com
Introducing...Rochester Women vs Parkinson's
Rochester Women vs. Parkinson’s - a group of women all diagnosed with PD - have joined together to address the fastest growing neurological disorder in the world. We volunteer our time to educate the community about Parkinson’s, the toll the disease takes and the essential steps that will help to prevent the disease.
Our mission is to advocate for policies and practices that prevent Parkinson’s and to improve the treatment and quality of life for those living with the disease.
What Can You Do?
--Contact your senators and members of Congress. Ask them to support increased research and regulation of environmental poisons. Advocate for funds to clean up state and federal superfund sites.
--Contact local officials and ask them to desist in using toxic pesticides in public parks and by sidewalks.
--Encourage the public to stop using toxic chemicals on their lawns.
--Support sustainable methods of farming such as crop rotation and integrated pest management. Purchase organic foods.
Want to do more?
Our mission is to advocate for policies and practices that prevent Parkinson’s and to improve the treatment and quality of life for those living with the disease.
What Can You Do?
--Contact your senators and members of Congress. Ask them to support increased research and regulation of environmental poisons. Advocate for funds to clean up state and federal superfund sites.
--Contact local officials and ask them to desist in using toxic pesticides in public parks and by sidewalks.
--Encourage the public to stop using toxic chemicals on their lawns.
--Support sustainable methods of farming such as crop rotation and integrated pest management. Purchase organic foods.
Want to do more?
Congratulations Rochester Accessible Adventures
How Genessee Land Trust is making nature accessible for all at Salmon Creek
https://www.wxxinews.org/local-news/2024-10-25/how-genessee-land-trust-is-making-nature-accessible-for-all-at-salmon-creek
https://www.wxxinews.org/local-news/2024-10-25/how-genessee-land-trust-is-making-nature-accessible-for-all-at-salmon-creek
How Will We Pay for Care: Financial Considerations
(Advance cursor to 4 minutes, 20 seconds to begin viewing the recording.)
The financial costs of long-term care and long-term caregiving are enormous. Explore some of your options for this important aspect of caregiving.
Presenter: Arvette M. Reid, Client Services Director, SEIA
This virtual presentation was originally prepared for Insight Memory Care Center (IMCC) on August 28, 2024. IMCC is located in Fairfax, Virginia and serves the DC metro area. Their caregiving resources are used across the country.
Ms. Reid covers scarcity of caregiving resources, continuing care retirement communities (CCRCs) and deals specifically with the case of couples wishing to stay together.
Presenter: Arvette M. Reid, Client Services Director, SEIA
This virtual presentation was originally prepared for Insight Memory Care Center (IMCC) on August 28, 2024. IMCC is located in Fairfax, Virginia and serves the DC metro area. Their caregiving resources are used across the country.
Ms. Reid covers scarcity of caregiving resources, continuing care retirement communities (CCRCs) and deals specifically with the case of couples wishing to stay together.
Let's Talk About Living With Parkinson's...
With Friends and Adult Family
My Degeneration
A Journey Through Parkinson's
Peter Dunlap-Shohl
A Journey Through Parkinson's
Peter Dunlap-Shohl
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease.
This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.
This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady.
The PD Movers We Keep Moving
THE PD MOVERS – WE KEEP MOVING storybook is a compilation of narratives of African American and Black individuals and caregivers who are living and thriving with Parkinson’s disease. The goal of the storybook is to inspire and connect individuals in the community by sharing the experiences of these remarkable individuals. We also hope these stories will educate others by removing the mysteries and misconceptions of Parkinson’s disease and provide useful resources regarding diagnosis and treatment to allow others to thrive with Parkinson’s disease.
With Children
I'll Hold Your Hand So You Won't Fall
Rasheda Ali
Rasheda Ali
Sometimes Parkinson's disease is difficult for adults to deal with, so you can imagine how much more perplexing it must be for children. In this beautiful book, adults will have an opportunity to read and discuss with children the most common symptoms of Parkinson's in a safe and creative environment that utilizes words, illustrations and medical facts about the disease.
Grandpa Used to Drive Big Trucks
Dr. Martha Nance & Steve Witebsky
Dr. Martha Nance & Steve Witebsky
In this chronic illness book for kids, readers learn that love is more powerful than any disease . . . and that grandparents living with Parkinson's disease are still our loving heroes.
The message at the core of the story makes it a perfect read for any child experiencing grief and loss—thoughtfully navigating how to mourn what has changed while showing young readers that even though they are just a kid, they can truly help!
The message at the core of the story makes it a perfect read for any child experiencing grief and loss—thoughtfully navigating how to mourn what has changed while showing young readers that even though they are just a kid, they can truly help!
How do I know if the Parkinson's educational resources I use are trustworthy?
This video was created and made available through Inova Parkinson's and Movement Disorders Center (IPMDC).
Inova is Northern Virginia’s leading nonprofit healthcare provider. Inova has within it a Parkinson's and Movement Disorders Center (IPMDC) that not only sees patients but also provides other resources, tools and support.
To sign up for Inova's Living Well with Parkinson's | IPMDC News, click here.
Inova is Northern Virginia’s leading nonprofit healthcare provider. Inova has within it a Parkinson's and Movement Disorders Center (IPMDC) that not only sees patients but also provides other resources, tools and support.
To sign up for Inova's Living Well with Parkinson's | IPMDC News, click here.
More Tools You Can Use...
From Sources You Can Trust
Parkinson's Foundation Hospital Safety Guide
The Hospital Safety Guide is a resource for people with Parkinson's and their care partners filled with useful tools and information to prepare for and navigate a hospital stay.
MJFF Guides for Living Well with Parkinson's
Easy-to-read, downloadable guides that provide practical tips and real-world advice for navigating life with Parkinson's disease
Your Checklist for Parkinson's Travel
PDF
As the busy summer season approaches, learn how to travel with greater ease with Parkinson's disease with the help of this tool prepared and provided by the Davis
Phinney Foundation.
6/19/24
Phinney Foundation.
6/19/24
HOME SAFETY SELF ASSESSMENT TOOL (HSSAT) v.3
PDF
Falls are the leading cause of injury, disability, nursing home placement, and death in adults over the age of 65 years. Yet in the United States one in every three older adults falls each year.
In order to address this problem, the Occupational Therapy Geriatric Group at the University at Buffalo
created the Home Safety Self Assessment Tool, as a part of combined effort with the Community
Health Foundation of Western and Central New York to disseminate information regarding how to
prevent falls in Erie County, NY.
Use of this tool as instructed in this book helps to prevent future falls. An online version of this tool is available for download at www.agingresearch.buffalo.edu.
6/19/2024
In order to address this problem, the Occupational Therapy Geriatric Group at the University at Buffalo
created the Home Safety Self Assessment Tool, as a part of combined effort with the Community
Health Foundation of Western and Central New York to disseminate information regarding how to
prevent falls in Erie County, NY.
Use of this tool as instructed in this book helps to prevent future falls. An online version of this tool is available for download at www.agingresearch.buffalo.edu.
6/19/2024